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Tuesday, June 28, 2022

Docs say my boy, 4, has less than a year to live – I’m heartbroken

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A HEARTBROKEN mum has revealed her heartache after her little boy was given less than a year to live.

Toy Story fan Noah, 4, was diagnosed with a terminal brain tumour last month, crumbling the lives of his devastated family members.

Noah, four, was diagnosed with a brain tumour and given just months to live

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Noah, four, was diagnosed with a brain tumour and given just months to liveCredit: DerbyshireLive/BPM
Emma McWilliams said her world crumbled after her little boy was diagnosed with a brain tumour

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Emma McWilliams said her world crumbled after her little boy was diagnosed with a brain tumourCredit: DerbyshireLive/BPM

His mum Emma McWilliams says her “world crumbled” is bracing herself for the next year ahead after doctors gave Noah between 10 months and two years to live.

She now just keeps “wishing for a miracle to happen” after her “sweet” and “super cheeky”

Noah was diagnosed on May 27 at the Royal Derby Hospital after being rushed to A&E when he lost mobility down the left side of his body.

She said no one was expecting to learn Noah had a severe brain tumour in his brain stem.

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The 27-year-old mum, who worked as a part-time dog walker/animal sitter before Noah was born, told the Derby Telegraph: “I honestly cannot explain the feelings I felt when they told me those words.”

The family were rushed to to see specialists, neurosurgeons to figure out what was wrong.

She said: “Although it was awful news to hear, I had hoped that it was something that could be treated.

“After three long days of waiting for an MRI scan to tell us more, we were given the worst news that there’s nothing they can do to cure him and that my little baby had anywhere from 10 months to maybe two years to live.

“My world crumbled when they told me he had the brain stem tumour and it just crumbled a million times more when they sadly gave me such devastating news.

“You can never be ready for being told anything like that.

“You see it happening to other people and you never think you’d ever be put in a situation like that yourself but sadly, it does happen and it can, to anyone.”

Noah is receiving radiotherapy treatment to stop the brain tumour from growing.

Miss McWilliams says her son is making her “unbelievably proud” and is a “real soldier” who is fighting as best he can.

“He’s doing good considering his diagnosis. He does get tired really easily now so he tends to have smaller play times, especially with losing left side mobility so he can’t walk as well or use his left hand as good, but he doesn’t let it stop him doing whatever he wants to do.

“I make sure he gets plenty of rest but he’s honestly handling everything all like a champ!

“There are some things he has picked up on and he knows there’s something going off, but luckily he hasn’t grasped that he’s unwell and what’s really happening so I’m grateful for that. I’d hate for him to know what I know.”

Miss McWilliams hopes she can take the youngster, who adores Toy Story, to Disneyland so he can meet his favourite characters in real life.

She said: “It would definitely be something I’d cherish for the rest of my life.”

The family has set up a GoFundMe page to try and raise money to get him to Paris.

The mum said she was waiting for a miracle

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The mum said she was waiting for a miracleCredit: DerbyshireLive/BPM
The brave little boy is seen grinning despite the devastating news

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The brave little boy is seen grinning despite the devastating newsCredit: DerbyshireLive/BPM
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She doesn’t have a goal or a total she is hoping to raise, but is just wanting to get as much awareness out there as possible.

Miss McWilliams said: “I want to do everything I can for him and make him explore all the things he loves so any kind of help from anyone would be appreciated beyond words.”





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